brain
injury and the role of support groups
Support
Groups Give Back What Has Been Lost
Have
you ever wondered what it is like to lose some of your cognitive
or intellectual abilities? Basic tasks suddenly become problematic.
We rarely consider the intellectual abilities required to successfully
cross a street, but for a person with a brain injury this
can be a nightmare. Socialisation becomes difficult. Family
and friends don't know how to come to grips with you and your
injury with the result that they often ignore or avoid you. Most persons
with a brain injury find it extremely difficult to be accepted
back into society after the injury. Support groups help the
brain injured and their significant others to readjust to society
and its demands.
Persons
with brain injuries and their families typically remember their
first attendance at a support group. It is often an emotional
experience and is accompanied by feelings of sadness, but also
joy. Many brain injured people explain that for the first time others
understand their difficulty. You don't have to explain yourself
to anybody. It is enough to say that you were unconscious for
a few days and are still trying on a daily basis to meet the
demands of society. Everybody is in the same boat and for many
it is the first time that their heartache is acknowledged.
In support groups patients
with brain injuries and their significant others can share their
emotional experiences. The loneliness of living with reduced
intellectual abilities can be discussed openly and this accelerates the
healing process.
Family and
friends can share their anxieties and struggle to provide the
best care that they can give. It is difficult for most caregivers
to always know what is best for the affected person. Some describe
their anxiety of trying to always do things right as a feeling
of walking on eggs and of constantly thinking about all your
actions. Sharing these experiences helps them to build confidence
and to provide the best possible care for the brain-injured
person.
For many
persons with brain injury the support group provides one of
the only opportunities for carefree socialisation. In the support
group, they are able to express themselves without reservation.
As everybody has some kind of injury and has been in recovery there is great tolerance and acceptance of 'making mistakes' and practicing skills. This takes away the pressure of trying to 'be perfect' and in that sense builds confidence and promotes personal growth.
Support
groups are facilitated by volunteers and usually meet once a
month. A group of anything between five and 30 people gather
and share their experiences. Often they sit in a circle and
talk about the injury and the effect that it has had on their
lives. At other times they may organise games and socialise
around this.
FOR
MORE INFORMATION:
Mental Health Information Centre
Tel: 021 938 9229
http://www.mentalhealthsa.co.za
Panorama Memory Clinic
Tel: 021 939 3152
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